Biomedical Data Asset: Poll
The Australian Research Data Common’s (ARDC's) Biomedical Data Asset project is a partnership between ARDC, Bioplatforms Australia, Phenomics Australia, Monash University and the Australian National University with engagement support provided by the Australian BioCommons. This project aims to link two of Australia’s most important biomedical data sets in a highly curated environment for the community.

The Biomedical Data Asset will combine human and animal model system data into one user-friendly and accessible environment. This will improve the functional understanding of genetic contributions to health and disease by synergistically boosting clinical management and biomedical research. Access to the biomedical data made available through this project will improve researcher ability to discover and experimentally validate gene function to improve diagnosis and treatment, especially in clinical human studies where genomic technologies have been used to identify genetic variation in relation to disease.

These data collections are:

1. The Aspirin in Reducing Events in the Elderly (ASPREE) study enabled through Monash University. ASPREE is a genomic and clinical data set from thousands of healthy older Australians. For further details, see: https://aspree.org/aus/

2. The mouse Missense Mutation Library (MML) created and curated at the Australian National University and enabled by Phenomics Australia. MML is a genomic and phenotypic database and biorepository of known variant missense and nonsense variant mice. For further details, see: https://tinyurl.com/ANU-MML

The Biomedical Data Asset project seeks the input of Australian researchers who are using, or planning to use, cross-species genomic and phenomic data sets in the medical or health sciences. We’d like to hear about your needs in this space - the data types, tools, portals and databases.

This poll will help us gather basic information to support and advise the development of the Biomedical Data Asset.

This survey should take around 10 minutes.
Privacy Collection Notice
By participating in this survey you agree that your responses will be collected by the Biomedical Data Asset project team, which includes staff at various organisations (ARDC, Phenomics Australia, Bioplatforms Australia, John Curtin School of Medical Research at Australian National University, ASPREE at Monash University and Australian BioCommons). The information you provide will only be used by appropriate staff for the purpose for which it was collected, solely for community-engagement purposes of gathering, documenting and understanding the needs for the development of the Biomedical Data Asset project. Your responses will be protected against unauthorised access and use; providing your name and/or email address is optional.

ARDC, Phenomics Australia, Bioplatforms Australia, John Curtin School of Medical Research at Australian National University, ASPREE at Monash University and Australian BioCommons are all committed to protecting personal information provided by you in accordance with applicable privacy laws (including the Privacy Act 1998 (“the Act”) and relevant state/territory legislation), and are governed by the Privacy Policy issued by each organisation or their respective legal parent organisation.
Your email address
If you would like to be sent notifications of activities or upcoming events related to the Biomedical Data Asset project, or to engage further with the project after this survey, please provide your email address (and name below).
Your name
1. What is your primary work sector?
2. What data do you currently use (tick all that apply)?
3. Do you have a need in your research to analyse, view or browse both human and model system (mouse) data side by side?
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4. What is your preference for working with online data? (tick all that apply)
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